Pseudomyxoma Survivor is the home of the support network for survivors and carers of Pseudomyxoma Peritonei (PMP), offering emotional encouragement and a community where we can collaborate online.
Pseudomyxoma Survivor offers help to anyone fighting the disease, be it patient or loved ones.
We now have an online support network of over 800 people easily contacted through this site or through our on-line Facebook support group all completely free of charge with no subscriptions.
Although this site is UK based we have fellow survivors WORLDWIDE.
This support network is mainly to offer emotional support and a support network where fellow patients and care givers can collaborate ideas and support online thus enforcing the fact that we are not alone in this fight and allows us to share our stories and further establish the growing online PMP community which has already proven invaluable to so many survivors of this rare disease.
Support can be accessed via email over the phone or by joining the Facebook support group where you will find hundreds of fellow PMP survivors from all over the world.
Pseudomyxoma Survivor aims to:
- To provide funds to support research into Pseudomyxoma, its causes, treatment and cure and to publish the useful results of such research.
- The relief of sickness and mental AND emotional distress of those suffering from Pseudomyxoma, their families and carers, particularly through the provision of a website providing advice and support.
Established: August 2010
Registered Charity Number: 1143642
Board members: 5
Phone number: 0300 3020050
Address: 9 Ilmington Close, Hatton Park, Warwick CV35 7TLView charity accounts on the Charity Commission website