Action Duchenne Limited

Action Duchenne Limited

Charity information

Action Duchenne Limited

Action Duchenne works to fund research to find a cure for Duchenne and Becker muscular dystrophy's whilst improving the lives of all of those who are living with the conditions.

Founded 2001

  • Mission statement

    Cure: To change Duchenne into a treatable and manageable condition by producing, and delivering, a broad research strategy that seeks to find the cure or treatment for Duchenne or Becker muscular dystrophy.

    Influence: To inform political debate in the fight to improve the quality of life for those living with Duchenne or Becker muscular dystrophy by changing attitudes in standards of care, healthcare professionals and to influence the bench to bed times for treatments for those suffering with rare conditions.

    Empower: To continue to provide education for those living with duchenne/beckers muscular dystrophy through Decipha and Takin’ Charge by: continuing to fund Decipha to provide specialist learning assessments and interventions to support young people , their families and schools and to increase attendance at the International Conference.

    Improve: To make the DMD registry as the database of choice for pharma and clinicians by increasing the numbers of those registering on the database and to increase revenue from it.

  • Aims

    Action Duchenne Limited aims to:

    • To find a cure for Duchenne and Becker muscular dystrophy.
    • To improve the lives of all of those living with Duchenne and Becker muscular dystrophy.
  • Overview

    Established: November 2001

    Registered Charity Number: 1101971

    Full time staff: 8

    Part time staff: 3

    Volunteers: 1

    Phone number: 020 8556 9955

    Address: Epicentre E11 4LJ

    View charity accounts on the Charity Commission website
  • Pilot Trials for Duchenne Muscular Dystrophy

    Work with partner organisations to run clinical trials of approved drugs that show promise... More