Action Duchenne

Action Duchenne

Charity information

Action Duchenne

Action Duchenne works to fund research to find a cure for Duchenne and Becker muscular dystrophy, whilst improving the lives of all of those who are living with the conditions.

Founded 2001

  • Mission statement

    Action Duchenne is striving for a world where lives are not limited by Duchenne muscular dystrophy.

    To achieve this with have 4 primary values:

    We fund research to identify and advance potential therapeutic strategies for everybody living with Duchenne, and support clinical trials and the staff and infrastructure required to bring trials to the UK.

    We campaign for the NHS to provide their patients with the earliest possible access to medicines that have been approved for the treatment of Duchenne.

    We strive to create an inclusive society where everybody is equal, where disability is accepted and is no longer a barrier in accessing transport and other facilities.

    We are building a community for all those affected by Duchenne - to bring people together to share their experiences and to raise the profile of the condition.

  • Aims

    Action Duchenne aims to:

    • To find a cure for Duchenne and Becker muscular dystrophy.
    • To improve the lives of all of those living with Duchenne and Becker muscular dystrophy.
  • Overview

    Established: November 2001

    Registered Charity Number: 1101971

    Full time staff: 7

    Part time staff: 3

    Volunteers: 10

    Phone number: 020 8556 9955

    Address: Epicentre E11 4LJ

    View charity accounts on the Charity Commission website
  • Lights, Camera, Action!

    To empower people living with Duchenne to be more confident, active, social and healthy.
  • Pilot Trials for Duchenne Muscular Dystrophy

    Work with partner organisations to run clinical trials of approved drugs that show promise... More