Funding vital research to find new treatments for neuroblastoma and improve existing treatments.
Neuroblastoma is a cancer that mainly affects young children and babies. While survival rates have improved, the mortality rate remains high. Relapse is common and is very hard to treat successfully. About 100 children develop neuroblastoma every year in the UK.
Neuroblastoma UK is the leading neuroblastoma research charity in the UK, having invested over £6M in scientific research projects. Neuroblastoma is the third most common childhood cancer after leukaemia and brain tumours, but is responsible for a disproportionate number of childhood cancer deaths. Whilst survival from leukaemia has dramatically improved over recent decades due to high profile fundraising, it is now neuroblastoma that urgently needs this profile, funding and research effort. Without this research, 30-40 children will continue to die every year in the UK, with many others living with the after-effects of harsh treatments.
The primary activity of the charity is fundraising and allocating funds to the best research projects through a rigorous grant assessment process. Neuroblastoma UK also organises a biennial Neuroblastoma Research Symposium, bringing the UK funding, research and clinical communities together with international experts for presentations, discussion and collaboration. We particularly encourage younger researchers and those new to the field to participate.
In conjunction with the CCLG we produce a comprehensive information booklet about neuroblastoma for parents and families.
Neuroblastoma UK aims to:
- The primary activity of the charity is to provide funding for the best neuroblastoma research projects through a rigorous grant assessment process.
- Organising a biennial Neuroblastoma Research Symposium bringing the UK funding, research and clinical communities together with international experts for presentations, discussion and collaboration.
- NBUK publishes a Parents' Booklet containing information for the family of a newly diagnosed child. It is available free of charge either in print or can be downloaded from our website.
Established: March 1982
Registered Charity Number: 326385
Board members: 14
Phone number: 020 8940 4353
Address: 54 Forest Road Richmond TW9 3BZView charity accounts on the Charity Commission website