The Annabelle Rose Foundation for Spinal Muscular Atrophy

The Annabelle Rose Foundation for Spinal Muscular Atrophy

Charity information

The Annabelle Rose Foundation for Spinal Muscular Atrophy

The Annabelle Rose Foundation for Spinal Muscular Atrophy is a Charity Registered in the UK, Dedicated to providing help & support to families affected by Spinal Muscular Atrophy (SMA).

Founded 2010

  • Mission statement

    The Annabelle Rose Foundation for Spinal Muscular Atrophy is a Charity Registered in the UK, founded in Febuary 2010 by Charlotte & Wayne Burfitt. Dedicated to providing help & support to families affected by Spinal Muscular Atrophy (SMA).

    Our Objectives/Aims are to:

    (i) Provide relief of persons suffering from SPINAL MUSCULAR ATROPHY and related
    conditions.

    (ii) Provide relief in cases of psychological and emotional distress of the parents and guardians and other relatives of such persons or of such persons who are deceased.

    (iii) Support The Promotion of research into the causes and treatment of SPINAL MUSCULARATROPHY subject to the publication of the useful results of such research.

  • Aims

    The Annabelle Rose Foundation for Spinal Muscular Atrophy aims to:

    • Support the promotion of research into the causes and treatment of SPINAL MUSCULAR ATROPHY subject to the publication of the useful results of such researc
    • Provide relief of persons suffering from SPINAL MUSCULAR ATROPHY and related conditions.
    • Provide relief in cases of psychological and emotional distress of the parents and guardians and other relatives of such persons or of such persons who are deceased.
  • Overview

    Established: February 2010

    Registered Charity Number: 1139272

    Board members: 8

    Volunteers: 8

    Phone number: 0300 8000 762

    Address: The Annabelle Rose Foundation for Spinal Muscular Atrophy 81 Woodwards, Harlow, Essex CM19 4NX CM19 4NX

    View charity accounts on the Charity Commission website