Behcets Syndrome Society

Behcets Syndrome Society

Charity information

Behcets Syndrome Society

Behçet’s (pronounced Betjets) is a rare, complex and life-long condition caused by disturbances in the body’s immune system. Behçet’s can affect people of any age, but it most commonly affects those between the ages of 20 and 40. The Behcets Syndrome Society (Charity Reg No 326679) runs a helpline, funds research, and offers financial support for patients in need.

Founded 1984

  • Mission statement

    The Behçets Syndrome Society has been established as a charity for 30 years and represents Behçets Patients and their carers. Equally important we exist for those not yet diagnosed with Behçets and those who think they may have Behçets. Behçets is a rare disease the terms Behçet's Disease and Behçet's Syndrome are used interchangeably , and refer to the same condition. Rare diseases are often misunderstood and are quite the orphans of the NHS; this is perhaps understandable given that a GP may never see a Behçets patient in their working life. However, for the undiagnosed Behçets Patient this can be a disaster, jeopardising sight, digestive tract and even life itself.
    What is Behçet's disease?
    Behçets disease is a rare, chronic, lifelong disorder that involves inflammation of blood vessels throughout the body. Symptoms of Behçet’s disease include recurrent oral and genital ulcers, and eye inflammation. The disorder may also cause various types of skin lesions, arthritis, bowel inflammation, meningitis (inflammation of the membranes of the brain and spinal cord). Behcets disease generally begins when patients are in their 20s or 30s, although all age groups may be affected. Behçet’s is a multisystem disease; it may involve all organs and affect the central nervous system, causing memory loss and impaired speech, balance and movement. The effects of the disease may include blindness, stroke, swelling of the spinal cord, and intestinal complications.
    Although Behçet’s disease is

  • Aims

    Behcets Syndrome Society aims to:

    • To find a cure for Behcets Disease
  • Overview

    Established: January 1984

    Registered Charity Number: 326679

    Board members: 8

    Full time staff: 1

    Part time staff: 3

    Volunteers: 20

    Phone number: 08451307328

    Address: 8 Abbey Gardens, Evesham, Worcs WR11 4SP

    View charity accounts on the Charity Commission website