Sebastian's Action Trust

Sebastian's Action Trust

Charity information

Sebastian's Action Trust

We are here for seriously-ill children and their families, always. We provide free specialist respite holidays and emotional, social and practical help to families from diagnosis, treatment and beyond.

Founded 2004

  • Mission statement

    We are Sebastian’s Action Trust, an incorporated charity based in Hampshire. Our charity was developed from the vision of one very special nine-year-old boy who launched his last wish just twelve days before he died of cancer in 2003. Sebastian’s aim was to provide a place where life-limited children and their families can holiday together away from the rigours of hospital appointments, gruelling treatment schedules and prying eyes. Importantly for very sick children the home needed to be clean, safe and adaptable to meet their often complex physical and emotional needs. Sebastian’s vision was simple, yet vital for those facing the loss of a beloved child; he wanted to create a private place where memories could be made which would last a life-time, even if that life was to be cruelly cut short.

    In 2011 Sebastian’s vision was finally realised and The Bluebells, the UK's first purpose-built respite holiday home, was completed. It supports families of children with complex health needs requiring wheelchair access and specialist medical equipment, coming from 46 counties of the UK. It has an indoor hydrotherapy pool with disabled access and we hold a range of specialist dry suits to enable children who have feeding and treatment tubes to access the pool. The house has a well stocked indoor games area, a home cinema, a multi-sensory room, a nine hole mini golf course, outdoor sensory garden and acres of beautiful gardens.

  • Aims

    Sebastian's Action Trust aims to:

    • To provide specialist respite holidays so families with seriously-ill children can enjoy a holiday which meets their needs and enables them to make memories to last forever.
    • To offer bespoke practical support to assist family members caring for a life-limited child . The support is tailored towards the needs of each family, both individually and as a collective unit.
    • To provide bereavement care for families facing the loss of a child. Our aim is to hold them through their darkest days, offering continuity of care through the days, weeks, months and years to come.
  • Overview

    Established: April 2004

    Registered Charity Number: 1151146

    Board members: 9

    Full time staff: 7

    Part time staff: 20

    Volunteers: 78

    Phone number: 01344 622500

    Address: Sebastian's Action Trust, Unit 8 Tanners Yard, London Road, Bagshot, Surrey GU19 5HD

    View charity accounts on the Charity Commission website
  • Family Outreach Hub

    We are seeking funding to run two Family Outreach Hubs- the Hubs provide a family friendly... More
  • The Bluebells - Family Respite Holidays

    The Bluebells is the UK's first family respite holiday home which provides a safe and supp... More
  • Special Family Days

    To create precious special days for children with a serious or life-limiting illness and t... More
  • Bereavement Support Service and Resources

    We are seeking funding for a range of specialist amenities and resources to support our ne... More