Duchenne Family Support Group

Duchenne Family Support Group

Charity information

Duchenne Family Support Group

We are a self help charity where families affected by Duchenne muscular dystrophy provide mutual support to share information and experiences.

Founded 1987

  • Mission statement

    The Duchenne Family Support Group (DFSG) is a national charity run by families for families affected by Duchenne muscular dystrophy, a severely disabling and life limiting neuromuscular condition. Our mission is to provide a positive national support network of parents, their families and professionals, and to help bring families together for mutual support, and sharing of information and experiences. We seek to do this by providing a free helpline, a regular newsletter and social media activity. We also provide subsidised holidays and social events where families, who are often isolated socially and geographically due to the rarity of the condition, can meet in a relaxed and sociable atmosphere.

  • Aims

    Duchenne Family Support Group aims to:

    • To provide a positive national support network of families afected by Duchenne muscular dystrophy
    • To enable families to come together to share ideas and experiences, and to enjoy social events
  • Overview

    Established: July 1987

    Registered Charity Number: 1128653

    Board members: 7

    Part time staff: 1

    Volunteers: 20

    Phone number: 0800 121 4518

    Address: 78 York Street London W1H 1DP

    View charity accounts on the Charity Commission website