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Scleroderma & Raynaud's UK (SRUK)

Scleroderma & Raynaud's UK (SRUK)

Charity information

Scleroderma & Raynaud's UK (SRUK)

We are the only UK charity dedicated to improving the lives of people affected by Scleroderma and Raynaud's.

We are here to improve awareness and understanding of these conditions, to support those affected, and ultimately, to find a cure.

Founded 2016

  • Mission statement

    Our Vision
    Our vision is a world where no-one has their life limited by Scleroderma and Raynaud's.

    Our Mission
    Our mission is to improve the lives of everyone affected by Scleroderma and Raynaud's. We do this by investing in research, improving awareness and understanding of the conditions and providing information and support to all those affected.

    We currently support twenty-two thousand people to live their lives better with a long-term condition. Our aim is to reach out to every single person who has a Scleroderma or Raynaud's diagnosis, providing them with the information and support they need and deserve.

    By creating connections between people with the conditions and professionals, we have built a motivated community that shares knowledge and support, works in partnership on research projects, and speaks up about Scleroderma and Raynaud's. We have a stronger voice together.

  • Aims

    Scleroderma & Raynaud's UK (SRUK) aims to:

    • To find safer and more effective treatments until ultimately we discover a cure.
    • To increase awareness and understanding of the conditions amongst the general public and health professionals.
    • To provide expert information, support and advice to enable those affected to live better every day.
  • Overview

    Established: March 2016

    Registered Charity Number: 1161828

    Board members: 6

    Full time staff: 6

    Part time staff: 2

    Volunteers: 20

    Phone number: 02038935993

    Address: SRUK, Bride House, 18 - 20 Bride Lane, London EC4Y 8EE

    View charity accounts on the Charity Commission website
  • Early Diagnosis is critical

    At present over 45% of people living with scleroderma waited 3 years or more to get a diag... More