Dravet Syndrome Uk

Dravet Syndrome Uk

Charity information

Dravet Syndrome Uk

Dravet Syndrome UK is an independent UK charity dedicated to improving the lives of those affected by Dravet syndrome through support, education and medical research.
We support families in many ways such as funding potential life saving monitors, organising an annual family weekend at Center Parcs, holding a biennial professional & family conference. Run a private online forum for families, fund a 16+ assistance grant as well as provide families with up to date information on their child's con

Founded 2008

  • Mission statement

    Dravet Syndrome UK is an independent UK charity dedicated to improving the lives of those affected by Dravet syndrome through support, education and medical research
    Dravet Syndrome UK operates on a national level and is made up of a team of trustees and five world-renowned professional advisors. This small team work very closely together to ensure we meet the needs of families affected by Dravet syndrome, whilst working with professionals in the field of neurology on research projects.
    Dravet Syndrome UK has three primary aims:
    To support families affected by Dravet syndrome emotionally, practically and financially.
    To fund medical research into Dravet syndrome and other related genetic sodium channel epilepsies.
    To raise awareness and understanding of Dravet syndrome within the professional community.

  • Aims

    Dravet Syndrome Uk aims to:

    • To support families affected by Dravet syndrome emotionally, practically and financially.
    • To fund medical research into Dravet syndrome and other related genetic sodium channel epilepsies.
    • To raise awareness and understanding of Dravet syndrome within the professional community.
  • Overview

    Established: October 2008

    Registered Charity Number: 1128289

    Board members: 4

    Part time staff: 4

    Volunteers: 4

    Phone number: 07874866937

    Address: PO BOX 756 S43 9EB

    View charity accounts on the Charity Commission website