The Ultra Rare Disease Disorders And Disabilities Foundation LTD

The Ultra Rare Disease Disorders And Disabilities Foundation LTD

Charity information

The Ultra Rare Disease Disorders And Disabilities Foundation LTD

Support those people ,their families dependence and carers affected by or believe to be affected by Ultra rare disease/Rare Diseases in Northern Ireland and any part of the world. The direct benefits which flow from this purpose are increased comfort and support for beneficiaries improved services for the beneficiaries.

WHO the charity Helps
Carers,
Children (5 to 13 year )
General Public
Learning Disabilities,
Men,
Mental Health,
Older People,
Parents,
Physical disabilities,
Preschool 0-5

Founded 2016

  • Mission statement

    The organization's mission statement is to eliminate the challenges of rare disease and ultra rare disease by building awareness',providing support networks and resources to positively impact affected patients and families , and to support the families with counselling support and to build a centre of excellence for patients and their families in the advancement of health or the saving of lives The relief of those in need by reason of youth ,aage,ill health, disability, financial hardship or other disadvantage

    How The Charity Works
    Advice/advocacy/information
    Disability
    Education/training
    Human Rights/Equality
    Medical/Health/Sickness
    Play Group/after School
    Research/evaluation
    Volunteer development
    welfare/benevolent
    youth development
    sensory disabilities
    tennants
    Unemployed/low income
    Voluntary and community sector,
    Volunteers
    Women
    Youth ( 14-25 year olds)

  • Aims

    The Ultra Rare Disease Disorders And Disabilities Foundation LTD aims to:

    • In the fight against ultra rare disease/Rare disease the most important work the charity must fulfill is setting up a network of Ultra rare disease/ rare disease / patients contact details/support
    • Support the patients and their families with counselling support providing family unit also who will need counselling support and if their are any other siblings may also need counselling support
    • we have to make sure the patients carers and the families need to be assured about their future and what their family unit will look like we as a charity must insure that building security /networks
  • Overview

    Established: February 2016

    Board members: 5

    Full time staff: 2

    Part time staff: 1

    Volunteers: 4

    Phone number: 0289002890650406

    Address: 86 Palmerston Road BT41QD