Haemophilia Scotland

Haemophilia Scotland

Charity information

Haemophilia Scotland

Haemophilia Scotland is a Scottish Charity representing the 2500 individuals and families with a diagnosed inherited bleeding disorder in Scotland.

Founded 2012

  • Mission statement

    We provide direct support and opportunities for peer to peer support. This can take place online or at our regular support events. We use the events to build supportive, mentoring style, relationships to build resilience in the bleeding disorders community.
    Our information is independent and patient friendly. We provide information in a variety of formats so that it can be understood and accessed by as many people as possible. We work closely with the healthcare professionals of the Scottish Haemophilia Centres and the Scottish Inherited Bleeding Disorders Network, http://www. Mcns. Scot. Nhs. Uk/sibdn/ further deepening these relationships.
    We aim to facilitate progressive influential relationships with the medical establishment, voluntary sector intermediaries, government agencies, similar UK organisations and international partners.

  • Aims

    Haemophilia Scotland aims to:

    • Haemophilia Scotland provides direct support and opportunities for members of the Scottish bleeding disorders community to support each other through events and mentoring.
    • We provide independent and patient friendly information relevant to living with a bleeding disorder.
    • We provide advocacy services to represent people with bleeding disorders and work closely with the Scottish Haemophilia Centres and other key stakeholders to secure the best possible treatment & care
  • Overview

    Established: January 2012

    Board members: 10

    Full time staff: 2

    Part time staff: 1

    Volunteers: 10

    Phone number: 0131 524 7286

    Address: 4th Floor, Hayweight House, 23 Lauriston Street, Edinburgh EH3 9DQ

    View charity accounts on the Scottish Charity Commission website