Ally Cadence Trust For Spinal Muscular Atrophy

Ally Cadence Trust For Spinal Muscular Atrophy

Charity information

Ally Cadence Trust For Spinal Muscular Atrophy

The Ally Cadence Trust for Spinal Muscular Atrophy works closely with families affected by SMA Type 1 across the UK, providing essential specialist equipment and vital emotional support. ACT for SMA provides a plethora of specialist non-medical equipment including prams, specialist car seats, sensory toys. The home visits as well as emotional support available on 24/7 through their phone line provide a life-line for isolated families struggling with caring for a terminally ill baby.

Founded 2009

  • Mission statement

    The Ally Cadence Trust for Spinal Muscular Atrophy aim to protect and promote the physical and mental health of sufferers of Spinal Muscular Atrophy and their families across the United Kingdom, through the provision of support, education and practical advice and funding into research into the condition. Also to advance the education of the general public in all areas relating to Spinal Muscular Atrophy

  • Aims

    Ally Cadence Trust For Spinal Muscular Atrophy aims to:

    • To provide specialist non-medical equipment to affected families across the UK
  • Overview

    Established: March 2009

    Registered Charity Number: 1133272

    Board members: 6

    Volunteers: 10

    Phone number: 08002343762

    Address: 107 Cleethorpe Road DN31 3ER

    View charity accounts on the Charity Commission website