Nephrotic Syndrome Trust (NeST)

Nephrotic Syndrome Trust (NeST)

Charity information

Nephrotic Syndrome Trust (NeST)

We support both children and adults with Nephrotic Syndrome and their families. We provide information via our website,busy facebook,community pages and support groups. We fundraise to support the the worldleading pioneering research being undertaken at Bristol laboratories.

Jonah Lomu the famous international rugby player suffered from Nephrotic Syndrome kindly launched our charity,but sadly has now passed away.

Founded 2004

  • Mission statement

    The Nephrotic Syndrome Trust (NeST) was set up in 2005 by trustee David Yearsley whose son James suffers from the disease. Nephrotic Syndrome affects around 10,000 people in the UK.

    Its main aims are to:

    Raise awareness of the disease
    Raise funds for research to find a cure
    Offer a website resource and forum for sufferers and their carers who often feel isolated

  • Aims

    Nephrotic Syndrome Trust (NeST) aims to:

    • Raise awareness of the disease
    • Raise funds for research to find a cure
    • Offer a website resource and forum for sufferers and their carers who often feel isolated
  • Overview

    Established: October 2004

    Registered Charity Number: 1107601

    Board members: 4

    Part time staff: 1

    Volunteers: 50

    Phone number: 01935 706042

    Address: 38 Southway Drive BA21 3ED

    View charity accounts on the Charity Commission website
  • NeST Community Networking

    Nephrotic Syndrome is a rare kidney disease and can be life threatening. We wish to raise ... More