Lipoedema UK

Lipoedema UK

Charity information

Lipoedema UK

We work with healthcare professionals and the general public to raise awareness of lipoedema, which is a chronic condition that is under-recognised and under diagnosed. Improving diagnosis is linked to improving treatment and improving lives for the many women living with lipoedema, especially those who have no idea why their legs are abnormal.

We also work to provide healthcare professionals with appropriate information to understand and support people with lipoedema.

Founded 2012

  • Mission statement

    Our charitable purpose is:

    To relieve the needs of people with lipoedema in particular but not exclusively by the provision of services, advice, information and support. To advance the education of the public in particular those involved in the diagnosis, treatment and care of those suffering from lipoedema.

    Lipoedema UK was founded in 2012 by women with Lipoedema, and the Lymphoedema Service at St George’s Hospital in London.
    Our Patrons are the UK’s leading Lipoedema expert, Professor Peter M Mortimer MD. FRCP. Professor of Lympho-vascular and Dermatalogical Medicine to St George’s and Royal Marsden Hospitals and Dr Kristiana Gordon MBBS, MRCP, CLT St George’s Hospital, London.
    Our focus is to educate doctors, health professionals and the public about Lipoedema and its symptoms, so it may be diagnosed and treated earlier.
    Because Lipoedema is frequently mistaken for obesity or Lymphoedema, many women don’t get appropriate advice or treatment – a state of affairs we are on a mission to change.
    Our belief is that with earlier diagnosis and treatment women can prevent developing further complications and manage their Lipoedema.
    We provide information about Lipoedema to our members and health professionals, report on research findings and commission our own research.
    We attend major medical conferences to encourage research and interest in the condition.
    Through our research we generate awareness of the condition and statistics that improve diagnosis and understanding.

  • Aims

    Lipoedema UK aims to:

    • To relieve the needs of people with lipoedema in particular but not exclusively by the provision of services, advice, information and support.
    • To advance the education of the public in particular those involved in the diagnosis, treatment and care of those suffering from lipoedema.
  • Overview

    Established: January 2012

    Registered Charity Number: 1157716

    Board members: 5

    Volunteers: 30

    Phone number: 07747 033757

    Address: Foxfield House Chichester Road West Wittering Chichester West Sussex PO20 8QB

    View charity accounts on the Charity Commission website
  • Impact of Lipoedema on gait

    Having carried out a pilot in October 2017 to identify people with lipoedema, we want to ... More