Guillain-Barre & Associated Inflammatory Neuropathies (GAIN)

Guillain-Barre & Associated Inflammatory Neuropathies (GAIN)

Charity information

Guillain-Barre & Associated Inflammatory Neuropathies (GAIN)

Guillain-Barré syndrome is a rare autoimmune condition affecting the peripheral nervous system, often leading to temporary or long-term paralysis. Around 80% of those with GBS will make a good recovery, but between 5-10% of people will not survive and the other 10-15% may be left with severe mobility or dexterity issues. GAIN helps people understand and manage both acute and chronic variants of the syndrome, raises awareness, and promotes clinical and non-clinical research into these conditions.

Founded 2013

  • Mission statement

    The objects of Guillain-Barre & Associated Inflammatory Neuropathies are to support people living in the UK and Ireland who are affected by Guillain-Barre syndrome and associated inflammatory neuropathies, including their families and carers, through the following channels;
    1. Providing information, non-medical advice, and other assistance
    2. Promoting research into the causes, prevention and treatment of Guillain-Barre syndrome and the associated variants, and
    3. Advancing the awareness of these conditions amongst the medical professions and the public

  • Aims

    Guillain-Barre & Associated Inflammatory Neuropathies (GAIN) aims to:

    • Providing information, non-medical advice, and other assistance
    • Promoting research into the causes, prevention and treatment of Guillain-Barre syndrome and the associated variants, and
    • Advancing the awareness of these conditions amongst the medical professions and the public
  • Overview

    Established: December 2013

    Registered Charity Number: 1154843

    Board members: 9

    Full time staff: 1

    Part time staff: 4

    Volunteers: 120

    Phone number: 01529469910

    Address: Woodholme House, Heckington Business Park, Station Road NG34 9JH

    View charity accounts on the Charity Commission website