Little Hearts Matter

Little Hearts Matter

Charity information

Little Hearts Matter

We provide support and information to children, and their families, when a child is diagnosed as having half a working heart. We support the family from initial diagnosis, through treatments, into life at home. We focus is on reducing feelings of isolation and fear that often accompany a diagnosis, connecting families with each other and providing medical information and emotional support.

Founded 1993

  • Mission statement

    Little Hearts Matter is committed to supporting, informing and empowering families on their journey when a child is diagnosed with half a working heart.

    Our key groups include:

    • Families expecting a child with half a heart
    • Children, young people and adults born with half a heart
    • Families of those living with half a heart
    • Bereaved families

  • Aims

    Little Hearts Matter aims to:

    • SUPPORT is at the heart of all we do. Our free service exists to ensure members have access to the information they need, a friendly voice to speak to and a community that understand their journey.
    • INFORM: We provide our members with accurate information and that covers every single aspect of the half a heart journey, starting with antenatal information right through to living with half a heart.
    • EMPOWER: Our member’s experience feelings of fear, isolation and confusion. We equip members with support and information. Thus empowering them & their families to live the very best lives they can.
  • Overview

    Established: January 1993

    Registered Charity Number: 1123290

    Board members: 8

    Full time staff: 5

    Part time staff: 3

    Volunteers: 4

    Phone number: 01214558982

    Address: Edgbaston B15 3BU

    View charity accounts on the Charity Commission website