Cure EB exists to fund promising research projects and clinical trials that aim to lead to effective treatments and ultimately a cure for Epidermolysis Bullosa
Our mission is to find a treatment for and to cure EB.
This is a genetic skin condition that leads to blistering and skin loss at the slightest friction. It is
Cure EB aims to:
- AIM 1. To fund preclinical research with the the potential to lead to treatments for Epidermolysis Bullosa and all its associated complications such as corneal abrasions and skin cancer
- AIM 2. To fund clinical trials to establish the value of a treatment in patients and from there move forward to delivering treatments to those suffering with EB on a large scale.
- AIM 3. To build capacity within hospitals to deliver treatment options for people with EB, for example this may be to provide a bio-reactor for making cells to deliver to EB patients
- AIM 4. Raise awareness of EB in print media, social media and TV and engage the public with the cause as well as disseminating research information through research update meetings and family days.
Established: January 2011
Registered Charity Number: 1158672
Board members: 5
Phone number: 02076070611
Address: 10 Huntingdon Street N1 1BUView charity accounts on the Charity Commission website