Max Appeal provides support to children and their families and adults affected by 22q11 Deletion Syndrome (DS). 22q11 DS is frequent genetic condition but still widely unheard of. It is unique to every individual, from fatal heart defects, catastrophic immune deficiency and severe learning difficulties to mild behavioural problems.
Not only do we provide information through the Consensus Document for 22q11 DS to families but we engage with professional bodies and organisations.
To enable people with 22q deletion to lead an independent and economically prosperous life as possible with Max Appeal being the voice to achieve appropriate medical care, social support, employment and empowerment for individuals and their families.
Max Appeal aims to:
- Max Appeal's vision is of a Society where children and adults affected by 22q11.2 deletion are valued and able to fulfil their potential.
Established: September 1999
Registered Charity Number: 1088432
Board members: 8
Part time staff: 3
Phone number: 01761462578
Address: Coombe Lodge, BS40 7RGView charity accounts on the Charity Commission website
Information LeafletsGood quality information about 22q11 Deletion Syndrome.