The Hypermobility Syndromes Association

The Hypermobility Syndromes Association

Charity information

The Hypermobility Syndromes Association

The Hypermobility Syndromes Association is a UK charity, supporting people with one of the hypermobility syndromes. These include joint hypermobility syndrome, hypermobility spectrum disorder, Osteogenesis Imperfecta, EDs, Marfan, Stickler syndromes. These are often invisible conditions & can be difficult to obtain an early diagnosis, increasing the chance of disability. Persistent pain and fatigue. They are usually genetic in nature, meaning more than one person in a family is affected.

Founded 1992

  • Mission statement

    2. 1 The aims and objects of the HMSA, concerning people who have a hypermobility syndrome or heritable disorder of connective tissue shall be to;
    ‘validate, educate and rehabilitate, via signposting people to appropriate services in the pursuit of diagnosis, treatment and effective self- management, and to continue to offer long term support via membership and a variety of resources. ’
    In furtherance of these aims and objects the HMSA shall have the following powers:-
    2. 2 To provide information, understanding, encouragement and support for people with a hypermobility syndrome or heritable disorder of connective tissue, as well as their dependents and partners.

    2. 3 To maintain the Information Standard, as accredited by NHS England, so as to ensure the high standard of all HMSA publications in whichever format deemed suitable.

  • Aims

    The Hypermobility Syndromes Association aims to:

    • 2.2 To provide information, understanding, encouragement and support for people with a hypermobility syndrome or heritable disorder of connective tissue, as well as their dependents and partners.
    • 2.3 To maintain the Information Standard, as accredited by NHS England, so as to ensure the high standard of all HMSA publications in whichever format deemed suitable.
    • 2.4 To promote contact between those persons suffering with a hypermobility syndrome or heritable disorder of connective tissue, in order to build personal support networks utilising the HMSA network
    • 2.5 To promote, carry out & to assist with the research into hypermobility syndromes or heritable disorders of connective tissue. To seek to be the patient partner and to publish research, surveys,
    • 2.6 To work with the relevant medical, social and health professionals in developing awareness of the biopsychosocial impact of a hypermobility syndrome or heritable disorder of connective tissue
  • Overview

    Established: May 1992

    Registered Charity Number: 1011063

    Board members: 3

    Part time staff: 2

    Volunteers: 56

    Phone number: 033 3011 6388

    Address: 49 GREEK STREET, LONDON, W1D 4EG W1D 4EG

    View charity accounts on the Charity Commission website