National Hereditary Breast Cancer Helpline

National Hereditary Breast Cancer Helpline

Charity information

National Hereditary Breast Cancer Helpline

Provides 24 hour help and support to anyone concerned about their increased risk of breast cancer due to family history. To provide information and raise awareness wherever possible but always follow our governance requirements from our two eminent professors/advisors

Founded 2012

  • Mission statement

    To provide information and support to everyone concerned about their increased risk of developing breast cancer due to family history. To help people research their family in order to obtain the appropriate referral. To help build co-ordinated fully trained support groups to help with this peer support. The priority here is to educate, raise awareness and provide a hand to hold throughout the process. 1 in 400 carry a faulty BRCA gene, conferring an 85% risk of developing breast cancer in their lifetime. A further 1 in 400 carry a fault in an as yet unidentified cancer gene. We are busy training admins for support groups, taking campaigns to the High st, raising awareness of the gene passing through the male line, and providing a helping hand through the difficult decisions awaiting those at potential risk. This is probably the only illness where surgical decisions have to be made before any symptoms are evident.
    With a positive gene test the options are stark
    1. Do nothing
    2. Have regular mammograms and MRI screens
    3. Take risk reducing medicines such as Tamoxifen
    4. Undergo preventive surgery (mastectomy/hysterctomy) to reduce the risk substantially.
    The Helpline was set up 20 years ago at the request of government minister Baroness Cumberlege. The service is available 24 hours despite little or no funding. Wendy Watson (founder) was the first person in the UK to undergo these preventive measures in 1992. Since then she has dedicated her life to this cause.

  • Aims

    National Hereditary Breast Cancer Helpline aims to:

    • Raise awareness as in our campaign - 'Make One Person Aware and save a family for generations to come.
    • Provide full peer support throughout the process
    • Provide information in as many high profile public venues as possible
    • Continue to provide a 24 hour helpline for all
  • Overview

    Established: December 2012

    Registered Charity Number: 1150183

    Board members: 4

    Full time staff: 25

    Part time staff: 7

    Volunteers: 150

    Phone number: 01629 813000

    Address: St Anne's Cottage DE45 1JE

    View charity accounts on the Charity Commission website