Association For Multiple Endocrine Neoplasia Disorders

Association For Multiple Endocrine Neoplasia Disorders

Charity information

Association For Multiple Endocrine Neoplasia Disorders

AMEND produces information resources and provides support services for families affected by the genetic cancer syndromes, multiple endocrine neoplasia disorders. Our medical society endorsed information resources include those especially developed for children from age 5 to 12. The AMEND website is HONCode certified and Wellcome Library archived. Support services include a professional counselling helpline and events. Membership, resources and services are all free for affected families

Founded 2003

  • Mission statement

    To relieve people who suffer from Multiple Endocrine Neoplasia (MEN) of all types, their families, friends and carers

  • Aims

    Association For Multiple Endocrine Neoplasia Disorders aims to:

    • Act as a reliable and accurate source of information for the public concerning MEN and its associated sporadic growths
    • Promote a wider knowledge of the illnesses among the medical profession to assist in early and accurate diagnosis
    • Provide reliable and accurate information with regard to genetic testing for people with MEN and its associated familial growths, their families, friends and carers
    • Provide emotional support to patients, their families, friends and carers
  • Overview

    Established: October 2003

    Registered Charity Number: 1153890

    Board members: 7

    Full time staff: 1

    Part time staff: 1

    Volunteers: 19

    Phone number: 01892 516076

    Address: The Warehouse, Draper Street, Tunbridge Wells, Kent TN40AQ

    View charity accounts on the Charity Commission website
  • Project Rollercoaster

    Help young people (aged 16-25) with genetic cancer syndromes, MEN, to transition effective... More