Nystagmus Network

Nystagmus Network

Charity information

Nystagmus Network

The Nystagmus Network is the oldest charity in the UK providing support and information about the eye condition nystagmus. The charity was established in 1980s and has been at the forefront in supporting people who are affected by the condition whilst also promoting a better understanding of nystagmus. Through the charity’s extensive involvement in research we are moving closer to finding effective treatments.

Founded 1985

  • Mission statement

    The Nystagmus provides a variety of services to those people with nystagmus. These are:

    # Support - The charity provides a support network
    to families and individuals through social media and large events.

    # Research - Through our research funding we have been able to develop a deeper understanding about nystagmus.

    # Awareness - The charity raises the awareness and
    understanding of nystagmus to the public and healthcare professionals.

    We are committed to finding an effective treatment for the condition and to ensure those with nystagmus have as high a quality of life as possible.

  • Aims

    Nystagmus Network aims to:

    • Research - support the research into nystagmus to understand the cause of the condition and to find a treatment.
    • Support - the charity has an extensive support network and brings together those people affected by the condition
    • Empowerment - the charity aims to empower those people with nystagmus to help them achieve their life goals.
  • Overview

    Established: March 1985

    Registered Charity Number: 803440

    Board members: 12

    Full time staff: 1

    Part time staff: 1

    Volunteers: 20

    Phone number: 07766745904

    Address: 94 Milborough Crescent SE12 0RW

    View charity accounts on the Charity Commission website
  • Nystagmus Network Open Day 2017

    Our aims to bring together all the people in the United Kingdom who are affected by the co... More