The Pepper Foundation

The Pepper Foundation

Charity information

The Pepper Foundation

The Pepper Foundation is a registered charity which funds a team of 7 nurses to provide specialist nursing care for children with life limiting illnesses, and support for their families within their own homes across the Chilterns area of Herts and Bucks. The Pepper children’s nursing service is provided free of charge to patients and their families 24 hours a day 365 days a year.

Founded 1993

  • Mission statement

    The Pepper Foundation is a registered charity which funds a team of 7 nurses to provide specialist nursing care for children with life limiting illnesses, and support for their families within their own homes across the Chilterns area of Herts and Bucks. The Pepper children’s nursing service is provided free of charge to patients and their families 24 hours a day 365 days a year.
    Pepper Ethos
    Alleviate the suffering of children with life limiting conditions by providing home care and support free of charge, primarily with funds for the Pepper Nursing Service, and also with grants to meet specific needs. The care provided by the Pepper children’s nursing team ensures that a child’s life – no matter how short – is made as comfortable and happy as possible.

    Referral Criteria

    Nurses support around 45-50 children at any one time from new born up to the age of 19 years, Pepper nurses are specialist trained paediatric nurses, who work in partnership with the GP and palliative care providers to help achieve a seamless service. The nurses not only treat the medical needs of the children, they are on hand to help address the emotional needs of the whole family in this desperate time of their lives.
    • Infants, children and young people up to the age of 19 years with a life limiting or life threatening condition;
    • Conditions for which curative treatment may fail;
    • Conditions where premature death is anticipated but intensive treatment may prolong life;
    • Progressive conditions without curative treatment options;
    • Conditions causing severe neurological disability leading to susceptibility of health complication and likelihood of premature death.

    Service Provision
    • Nursing care
    • Respite
    • Symptom management
    • End of life care
    • Out of hours
    • Specialist medical support 24/7
    • Emotional support
    • Pre and post bereavement support

    Quote Dr Harrop, HDH

    “This type of specialist care needs to be available to families, wherever they choose to be….
    The Pepper Nursing Service meets these standards par excellence. The service is both flexible and responsive. As a consultant in paediatric palliative care, I feel that our partnership has been a huge benefit to families that we are both privileged to serve.

    I always feel a relief when I recognise that a family falls within the catchment areas for the Pepper service, as I know with certainty that they will receive a beacon standard of care, delivered by a team that always go the extra mile”.
    Dr Harrop HDH
    Iain Rennie
    We work within the Iain Rennie building but we are a separate charity, solely funding the Iain Rennie Pepper Nurses. We have to raise 400k per year to support the nursing and family support teams.
    The clinical side is managed by Iain Rennie Grove House.

    Pepper Organization
    • Volunteer Board of Trustees
    • Pepper Events Trading subsidiary
    • 3 Part-time Employees
    • Ambassadors/Patrons/Friends
    • Volunteers
    • 6 Specialist paediatric nurses and a team of 3 family support workers all employed by Rennie Grove Hospice Care.

    A group of musicians produced a rock show of the Sgt Pepper’s Lonely Hearts Club Band 25 years ago. All musicians gave their time FOC and the show is run by volunteers, many of whom are still Trustees today. The Pepper Foundation became a registered charity in 1993, with 1 part- time nurse. The Pepper Rock shows have been an integral date in the Pepper fundraising calendar for the past 25 years.

    Pepper Progress

    • First fundraising event in 1989 – Sgt Pepper
    • Since 1993 over £3 million has been raised
    • Over 500 families helped by the Pepper nursing team
    • More than 50,000 people have seen the summer show
    • Nursing resources have increased from one part- time to 7 full- time nurses + play therapist +
    family support coordinator
    • Funded the Pepper Bone Marrow Transplant Lab at Great Ormond Street Hospital
    • Funded numerous equipment for patients


    The Charity’s main activities to achieve this are:-
    • Successful, profitable, value for money events via the Charity’s trading arm, Pepper Events Limited (PEL).
    • Assistance and expertise to supporters holding their own fundraising events.
    • Encouraging strong non-event fundraising e. G. Charitable Trust Grants.
    • Strong community awareness of the charity and its activities.
    • Innovative marketing initiatives to support growth.
    • Strong connections with the Pepper Nurses and the patients’ families.
    • Organisational efficiency (motivated employees, good communications, robust processes, lowest cost).

    The Role and Contribution of Volunteers

    With two part time employees and an event based fundraising strategy, the charity’s success depends considerably on its team of volunteers, both for its events and other fundraising activities. The recruitment and motivation of these volunteers requires the charity to provide a highly visible presence in the local community, within local schools etc.
    Commitment is significant but rewarding and several young volunteers have found new direction and focus by being involved with the charity and career opportunities have arisen.
    The charity requires the volunteer Board of Trustees to work closely and continually throughout the year to enable the charity to achieve its goals. Some volunteers are members of the company and all volunteers are offered the opportunity to become ‘Friends of Pepper’ or Ambassadors to support all the fundraising events arranged. “Friends of Pepper” support the charity with donations and event participation, while “Ambassadors” are a new innovation to develop a small pool of experienced and committed volunteers to help at events where significant numbers are required, such as for marshalling a walk or run.

    Non-Event fundraising
    • Through promotion efforts, generous donations continue to be received from an even wider geographical area; sources such as Rotary clubs, golf clubs, sponsored activities, churches, musical events, birthday and wedding parties. Some specific examples include a 1000 mile motorcycle trek, participating in the great London Swim and skydiving.
    • Revenue from charitable trust applications

    Innovative marketing initiatives to support growth
    • The use of social media to promote awareness of the charity, supporters and fundraising.
    • The search continued for appropriate premises for a Pepper Shop in Berkhamsted.
    • The new greatly improved Foundation website, literature including nursing leaflet’s and generic merchandise has been produced. Foundation’s newsletter ‘Pepper News’ circulated to friends and supporters. The Foundation continues to look at ways of improving the website and reducing the cost of the Newsletter without compromising its quality.
    • The Foundation has revised its logo during 2013, and replaced the strapline “Care for Children, Support for Families”, with “Children’s Hospice at Home”. It leaves no room for doubt about what we do.

    Pepper Nurses and the patients’ families
    • Build relationships with patients & families
    • Work with families to write sensitive case studies for use with funding applications.
    • Social events between nurses and Trustees.
    • Patient families participate in Pepper events such as the Sunrise Walks, and organized events on our behalf such as a School Ball.
    • The charity routinely invites a patient’s family to speak at the AGM, community and corporate presentations

    Organisational Efficiency
    • Ambassadors for Pepper have been appointed from the ever increasing core of supporters/past Trustees to spread the work load of Trustees and PEL Board members. Their assistance varies from speaking at meetings to marshalling at walks, Santa Float collections and envelope stuffing.
    • Trustee attendance at conferences and relevant training sessions.
    • Lead Fundraiser & Trust fundraiser attendance at conferences and training sessions.
    • Monthly fundraising reports to the board of trustees.
    • Member of the Institute of Fundraising

  • Aims

    The Pepper Foundation aims to:

    • Challenge funding Christmas appeal
  • Overview

    Established: September 1993

    Registered Charity Number: 1056823

    Board members: 8

    Full time staff: 2

    Part time staff: 1

    Volunteers: 40

    Phone number: 01442 507311

    Address: The Pepper Foundation Rennie House, Unit 3 Icknield Way Industrial Park Tring Herts HP23 4JX

    View charity accounts on the Charity Commission website