Huntington's Disease Association

Huntington's Disease Association

Charity information

Huntington's Disease Association

The Huntington's Disease Association empowers, informs, and supports nearly 16,000 people across England and Wales who are affected by this incurable, hereditary, and devastating illness.

Founded 1971

  • Mission statement

    We are committed to supporting people affected directly or indirectly by Huntington’s disease
    We pursue the best possible care
    We provide training, information, and advice to families and professionals
    We raise awareness
    We promote research toward better treatment and the ultimate aim of a cure for HD

  • Aims

    Huntington's Disease Association aims to:

    • To provide information and support to people with a diagnosis of Huntington's disease (HD) and those at risk of developing the illness.
    • To provide advice and information to carers.
    • To provide opportunities, information, and support for children and young people.
    • To educate service providers and commissioners to the needs of HD families.
    • To create public awareness of HD in order to eradicate ignorance.
  • Overview

    Established: May 1971

    Registered Charity Number: 296453

    Board members: 10

    Full time staff: 20

    Part time staff: 14

    Volunteers: 2000

    Phone number: 0151 482 9069

    Address: Suite 24 Liverpool Science Park, Innovation Centre 1131 Mount Pleasant L3 5TF

    View charity accounts on the Charity Commission website
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