The Cardiomyopathy Association

The Cardiomyopathy Association

Charity information

The Cardiomyopathy Association

We provide information, advice and support to enable anyone affected by the heart muscle disease cardiomyopathy to lead long and fulfilling lives. We help educate doctors and nurses to improve care.

Founded 1990

  • Mission statement

    We provide information, advice and support to enable anyone affected by cardiomyopathy to live as full a life as possible. We raise awareness, improve diagnosis and management of the condition and we promote medical research.

    We are caring, expert and quick to respond. We are dedicated to supporting those affected by cardiomyopathy across the UK, reaching out to anyone who needs us. We will work with others whenever it will benefit those affected by cardiomyopathy. We make sure the specialist information we provide is up to date and from reliable sources.

    Cardiomyopathy is a heart muscle disease affecting the heart’s ability to pump properly. It runs in families and affects people of all ages. It is the main medical cause of young people dying suddenly. It affects at least one in 500 people, but with correct diagnosis and treatment, most people can lead a long and fulfilling life.

    We help people living with cardiomyopathy and their families. Often inherited, a cardiomyopathy diagnosis has repercussions for close relatives who may benefit from tests to determine whether they are also at risk. We provide training and resources to doctors and nurses, including GPs, to help them recognise symptoms and make appropriate referral for diagnosis. We help specialist doctors and nurses working in cardiology (heart healthcare) to understand developments in diagnosis and treatment, to help them improve care for their patients.

  • Aims

    The Cardiomyopathy Association aims to:

    • Increase support by reaching everyone affected by cardiomyopathy with our expert information and our services for families.
    • Improve diagnosis by ensuring that medical professionals are well informed about cardiomyopathy and understand the importance of early intervention for better outcomes.
    • Improve care so that people affected by cardiomyopathy get the appropriate services and support at the right time.
    • Support finding a cure by working with others to improve and support medical research.
  • Overview

    Established: April 1990

    Registered Charity Number: 803262

    Board members: 11

    Full time staff: 7

    Part time staff: 7

    Volunteers: 150

    Phone number: 01494791224

    Address: Unit 10 Chiltern Court Asheridge Road Chesham Bucks HP5 2PX

    View charity accounts on the Charity Commission website
  • Children's Cardiomyopathy Service

    Cardiomyopathy is the most common medical cause of young people dying suddenly. When child... More