Tourette Syndrome (uk) Association

Tourette Syndrome (uk) Association

Charity information

Tourette Syndrome (uk) Association

We are the UK's leading support and research charity for people with Tourette Syndrome (TS) There are more than 300,00 people in the UK with TS. Our aim is to support them and their families.

Founded 1991

  • Mission statement

    Our vision is a world where people with Tourette Syndrome (TS) receive the practical support and social acceptance they need to help them live their lives to the full. We help people with TS to be included in education, at work and in society, throughout their lives. We also support research to improve their quality of life.

    Tourette Syndrome is an inherited neurological condition of unknown origin. It affects one school child in every hundred and more that 300,000 children and adults in the UK. The key feature is tics - involuntary and uncontrollable sounds and movements.

    Tics usually start in childhood (approx aged seven) and worsen between the 10-12 years, However, in approximately half of people with TS, most symptoms disappear by the age of 18. TS is a persistent disorder but not always greatly disabling. Tics range from simple blinking or complex like touching.

    The well known feature of coprolalia, or involuntary swearing is present in only about 10% of cases.

    Tourettes Action works with the media to dispel the stereotypical portrayal that everyone with TS swears. This is done through informative news pieces, radio broadcasts and TV programmes to raise awareness based on real TS families.

    TA offers a helpline, school advocacy, education for health professionals website, forum, social media, research and support groups up and down the country.

    TA reaches out to as many TS families and friends giving support, advice, guidance and information to avoid isolation.

  • Aims

    Tourette Syndrome (uk) Association aims to:

    • Our prime aim to offer support for people with TS, Offering a helpline, UK support groups, information leaflets, website and forum. As well as educational and work support for all people with TS.
    • Reduce the isolation felt by people with TS, Support groups offer them reassurance they are not alone. Meeting other people with TS face to face whilst the online forum allows moderated discussion
    • Reducing stigma. Social acceptance is key to people with TS to lead their lives to the full. Through education and raising awareness, we aim to reduce stigma (particularly swearing) attached to TS,
    • Campaigning for better treatments. We lobby government to campaign for better treatments and work closely with researchers to see what work is being investigated to be available now or in the future.
    • Training health professionals. Running seminars to offer education and training on specific areas of TS which covers all areas. we have various specialist speakers that lecture and educate on TS.
  • Overview

    Established: May 1991

    Registered Charity Number: 1003317

    Board members: 11

    Full time staff: 2

    Part time staff: 8

    Volunteers: 50

    Phone number: 01252 362638

    Address: ​ The Meads Business Centre, ​19 Kingsmead, ​Farnborough, ​Hants GU14 7SR

    View charity accounts on the Charity Commission website