Sturge Weber UK

Sturge Weber UK

Charity information

Sturge Weber UK

Sturge Weber UK is a voluntary support group for anybody affected by Sturge Weber syndrome, a rare neurological disorder which is usually characterised by a facial birthmark.

Founded 1993

  • Mission statement

    The charity supports anybody affected by the rare Sturge Weber syndrome. The charity aims to raise awareness of the syndrome amongst both the public and professionals and to facilitate this via leaflets, social media and word of mouth.
    To provide social opportunities for parents to meet and offer mutual support and for siblings to meet and support each other.
    To raise funds in order to produce resources and finance family weekends/conferences.
    The charity is run entirely by volunteers who all have a child with the syndrome.

  • Aims

    Sturge Weber UK aims to:

    • To raise awareness amongst public and professionals.
    • To offer information and support to anybody affected by Sturge Weber syndrome
    • To raise funds in order to produce information leaflets and to provide social opportunities for families to meet up and offer mutual support and also listen to professional speakers.
  • Overview

    Established: January 1993

    Registered Charity Number: 1016688

    Board members: 4

    Volunteers: 4

    Phone number: 01392 464675

    Address: 348 Pinhoe Road, Exeter, Devon, EX4 8AF

    View charity accounts on the Charity Commission website