The Duchenne Children's Trust

The Duchenne Children's Trust

Charity information

The Duchenne Children's Trust

The Duchenne Children's Trust funds research into treatments and a cure for Duchenne Muscular Dystrophy, the most common genetic killer of young boys.

Founded 2012

  • Mission statement

    The sole aim of the Duchenne Children's Trust, is to fund raise for medical research into finding treatments and a cure for Duchenne Muscular Dystrophy (DMD). DMD is the most common genetic killer of young boys - the disease nearly always affects boys. DMD is a cruel and relentless neuromuscular condition that affects every muscle in the body, causing it to weaken and die. Life expectancy is around 20 years old. There is no cure for this disease. However the science is now at such an exciting point , a point where we - and many of the scientists believe - that treatments and a cure are within reach. What we need is the money to bring advances made in the laboratories into clinics where they can help patients. We are funding a project at Oxford University. We are also funding a project with a small bio-tech firm in Holland.

  • Aims

    The Duchenne Children's Trust aims to:

    • The aim of our charity is to fund medical research into treatments and a cure for Duchenne Muscular Dystrophy.
    • To educate the public and policy makers about the severity of DMD, and need to accelerate the development and approval of drugs to benefit this generation of boys.
  • Overview

    Established: April 2012

    Registered Charity Number: 1147094

    Board members: 5

    Part time staff: 1

    Volunteers: 2

    Phone number: 07929623123

    Address: 40 Brondesbury Road London NW6 6BS

    View charity accounts on the Charity Commission website
  • Duchenne Muscular Dystrophy Research

    We need £20,000 for a project at Oxford University that will research potential new drugs... More