The SMA Trust

The SMA Trust

Charity information

The SMA Trust

The SMA Trust's target remains constant; to be active and progressive in the search for a cure and treatments for SMA. Since it was founded in 2003, the charity has spent over £3M on research.

Founded 2003

  • Mission statement

    The SMA Trust is the only UK charity solely dedicated to funding medical research into SMA and fund 75% of UK Charity-funded research into the condition.

    Key facts about SMA:

    SMA is genetic, incurable and currently untreatable.

    SMA is the leading killer of infants & toddlers.

    1 in every 6000-10,000 births is affected by SMA.

    1 in every 40-60 people carries the defective gene that causes SMA.

    At any one time, approximately 2500 people in the UK are living with SMA.

  • Aims

    The SMA Trust aims to:

    • To be active and progressive in the search for a cure and treatments for SMA.
  • Overview

    Established: May 2003

    Registered Charity Number: 1097765

    Board members: 10

    Full time staff: 3

    Part time staff: 3

    Volunteers: 10

    Phone number: 01789 801155

    Address: 1c Atherstone Barns Atherstone on Stour Stratford upon Avon Warwickshire CV37 8NE

    View charity accounts on the Charity Commission website
  • Muscle Power

    Our campaign aims to raise awareness of SMA & build a £1 million Development Fund over th... More