The SMA Trust

The SMA Trust

Charity information

The SMA Trust

At The SMA Trust, we fund vital research into a cure and treatments for Spinal Muscular Atrophy (SMA). SMA is an inherited, progressive, neuromuscular condition that affects muscle development.

There are 4 main types of SMA. In it's most common and most severe form, Type 1 SMA is the leading genetic cause of death in children under 2.

Founded 2003

  • Mission statement

    The SMA Trust is the only UK charity solely dedicated to funding medical research into SMA and fund 75% of UK Charity-funded research into the condition.

    Key facts about SMA:

    SMA is genetic, incurable and currently untreatable.

    SMA is the leading killer of infants & toddlers.

    1 in every 6000-10,000 births is affected by SMA.

    1 in every 40-60 people carries the defective gene that causes SMA.

    At any one time, approximately 2500 people in the UK are living with SMA.

  • Aims

    The SMA Trust aims to:

    • To be active and progressive in the search for a cure and treatments for SMA.
  • Overview

    Established: May 2003

    Registered Charity Number: 1097765

    Board members: 11

    Full time staff: 4

    Part time staff: 4

    Volunteers: 10

    Phone number: 01789 801155

    Address: 3 Wychwood Court, Cotswold Business Village, Moreton-in-Marsh GL56 0JQ

    View charity accounts on the Charity Commission website
  • Muscle Power

    Our campaign aims to raise awareness of SMA & build a £1 million Development Fund over th... More