The SMA Trust
The SMA Trust
At The SMA Trust, we fund vital research into a cure and treatments for Spinal Muscular Atrophy (SMA). SMA is an inherited, progressive, neuromuscular condition that affects muscle development.
There are 4 main types of SMA. In it's most common and most severe form, Type 1 SMA is the leading genetic cause of death in children under 2.
The SMA Trust is the only UK charity solely dedicated to funding medical research into SMA and fund 75% of UK Charity-funded research into the condition.
Key facts about SMA:
SMA is genetic, incurable and currently untreatable.
SMA is the leading killer of infants & toddlers.
1 in every 6000-10,000 births is affected by SMA.
1 in every 40-60 people carries the defective gene that causes SMA.
At any one time, approximately 2500 people in the UK are living with SMA.
The SMA Trust aims to:
- To be active and progressive in the search for a cure and treatments for SMA.
Established: May 2003
Registered Charity Number: 1097765
Board members: 11
Full time staff: 4
Part time staff: 4
Phone number: 01789 801155
Address: 3 Wychwood Court, Cotswold Business Village, Moreton-in-Marsh GL56 0JQView charity accounts on the Charity Commission website
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