Fanconi Hope

Fanconi Hope

Charity information

Fanconi Hope

Supporting families affected by the rare, life-limiting genetic condition, Fanconi Anaemia.

Founded 2008

  • Mission statement

    Fanconi Anaemia (FA) is a rare genetic disorder mainly affecting children.
    The Fanconi Hope Charity is a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA:-
    To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care.
    To promote awareness and understanding of Fanconi Anaemia among affected families, the medical profession, and the general public.
    To encourage translational research which may directly benefit Fanconi Anaemia affected children and their families.
    To encourage research in the area of Fanconi Anaemia that may have benefit for the general public, e. G. , in the treatment of cancers in general.

  • Aims

    Fanconi Hope aims to:

    • To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care.
  • Overview

    Established: May 2008

    Registered Charity Number: 1126894

    Board members: 7

    Volunteers: 7

    Phone number: 07962 724084

    Address: PO Box 905, Southsea PO1 9JG

    View charity accounts on the Charity Commission website
  • Fanconi Anaemia Blood Sample and Tissue Depository

    £5000 will provide a cryogenic freezer and transit fridge to store samples from patients ... More