Supporting families affected by the rare, life-limiting genetic condition, Fanconi Anaemia.
Fanconi Anaemia (FA) is a rare genetic disorder causing bone marrow failure and cancers in children and adults.
The Fanconi Hope Charity is a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA:-
To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care.
To promote awareness and understanding of Fanconi Anaemia among affected families, the medical profession, and the general public.
To encourage translational research which may directly benefit Fanconi Anaemia affected children and their families.
To encourage research in the area of Fanconi Anaemia that may have benefit for the general public, e. G. , in the treatment of cancers in general.
Fanconi Hope aims to:
- To support a UK Fanconi Anaemia National Registry so as to ensure that people affected by Fanconi Anaemia and their families are kept track of and provided with the best care.
Established: May 2008
Registered Charity Number: 1126894
Board members: 7
Phone number: 07962 724084
Address: PO Box 905, Southsea PO1 9JGView charity accounts on the Charity Commission website
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