Children's Heart Federation

Children's Heart Federation

Charity information

Children's Heart Federation

The Children’s Heart Federation is the UK’s leading children’s heart charity. We support children born with a heart conditions and their families by bridging their views to policy makers.

Founded 1988

  • Mission statement

    Our vision is that all children with heart conditions have both their medical and social needs met so that they can live life to the full.

    We deliver emotional, financial and advisory support to children and young people with heart conditions and their families, empowering them to make informed decisions about their healthcare and future prospects though:
    - The provision and advice in factsheets and publications available online and in hard copy.
    - A national helpline for young adults with CHD, families and those that work with them including teachers and healthcare professionals.
    - Emergency grant giving to families in financial or medical need.
    - Organising events for young adults and families with a young child with CHD.
    - Providing guidance to parent groups located near heart units and encouraging partnership work.
    - Campaigning to improve the health, social and educational provision to children with heart conditions.

    The quality of our services hold the Information Standard kite mark for health and social care.

  • Aims

    Children's Heart Federation aims to:

    • To increase awareness of the challenges of growing up with congenital heart disease.
    • To assist families with children affected by congenital heart disease in having their views considered by policy makers.
    • To support young people during their transition from paediatric to adult heart services.
    • To act as an open door for everyone that is affected by a child's congenital heart problem, including siblings, educational providers and healthcare services.
    • To support families with a congenital heart child at times of severe difficulties.
  • Overview

    Established: June 1988

    Registered Charity Number: 1120557

    Board members: 6

    Full time staff: 6

    Part time staff: 3

    Volunteers: 20

    Phone number: (0) 1376 780 044

    Address: 2-4 Great Eastern Street London EC2A 3NW

    View charity accounts on the Charity Commission website
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