Tourettes Action

Tourettes Action

Charity information

Tourettes Action

Tourettes Action is a charity
that works to improve the
lives of people with Tourette
Syndrome and their families

Founded 1991

  • Mission statement

    - support people with TS through all the stages of their lives.
    - facilitate their inclusion in society by raising accurate awareness of TS.
    - fund and facilitate substantial research.

    Tourette Syndrome is an inherited neurological condition of unknown origin. It affects one school child in every hundred and more that 300,000 children and adults in the UK. The key feature is tics - involuntary and uncontrollable sounds and movements.

    Tics usually start in childhood (approx aged seven) and worsen between the 10-12 years, However, in approximately half of people with TS, most symptoms disappear by the age of 18. TS is a persistent disorder but not always greatly disabling. Tics range from simple blinking or complex like touching.

    The well known feature of coprolalia, or involuntary swearing is present in only about 10% of cases.

    Tourettes Action works with the media to dispel the stereotypical portrayal that everyone with TS swears. This is done through informative news pieces, radio broadcasts and TV programmes to raise awareness based on real TS families.

    TA offers a helpline, school advocacy, education for health professionals website, forum, social media, research and support groups up and down the country.

    TA reaches out to as many TS families and friends giving support, advice, guidance and information to avoid isolation.

  • Aims

    Tourettes Action aims to:

    • Our prime aim to offer support for people with TS, Offering a helpline, UK support groups, information leaflets, website and forum. As well as educational and work support for all people with TS.
    • Reduce the isolation felt by people with TS, Support groups offer them reassurance they are not alone. Meeting other people with TS face to face whilst the online forum allows moderated discussion
    • Reducing stigma. Social acceptance is key to people with TS to lead their lives to the full. Through education and raising awareness, we aim to reduce stigma (particularly swearing) attached to TS,
    • Campaigning for better treatments. We lobby government to campaign for better treatments and work closely with researchers to see what work is being investigated to be available now or in the future
    • Training health professionals. Running seminars to offer education and training on specific areas of TS which covers all areas. we have various specialist speakers that lecture and educate on TS
  • Overview

    Established: June 1991

    Registered Charity Number: 1003317

    Board members: 10

    Full time staff: 1

    Part time staff: 8

    Volunteers: 6

    Phone number: 01252 362639

    Address: The Meads Business Centre Gu14 7SR

    View charity accounts on the Charity Commission website
  • Support for Young People with TS

    Children with Tourette Syndrome are often acutely isolated by their condition, paralysingl... More
  • Help the HelpDesk

    Develop our free HelpDesk, a cornerstone service, so we help the increasing numbers of peo... More
  • Improve Quality of Life for adults with Tourette S...

    Help people self-manage their TS so that they are empowered to lead active and fulfilling ... More