Society for Mucopolysaccharide Diseases

Society for Mucopolysaccharide Diseases

Charity information

Society for Mucopolysaccharide Diseases

The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS, Fabry and related diseases throughout the UK. We provide a range of support services for our members and their families through an individual needs-led Advocacy Support Service. We also raise awareness of these ultra-rare diseases and fund research into treatments.

Founded 1982

  • Mission statement

    Our vision is for all people affected by our diseases to live the lives they want.

    Our mission is to transform lives through specialist knowledge, support & advocacy, and research.

  • Aims

    Society for Mucopolysaccharide Diseases aims to:

    • Ensure affected people know where to turn for specialist knowledge, support & advocacy
    • Provide services people tell us they need, in a way that suits them
    • Take an active role in research
    • Help ensure families receive the fastest possible diagnosis
    • Champion new and existing treatments and therapies
  • Overview

    Established: January 1982

    Registered Charity Number: 1143472

    Board members: 9

    Full time staff: 12

    Part time staff: 14

    Volunteers: 25

    Phone number: 03453899901

    Address: Repton Place HP7 9LP

    View charity accounts on the Charity Commission website