Association For Glycogen Storage Disease (UK) Ltd

Association For Glycogen Storage Disease (UK) Ltd

Charity information

Association For Glycogen Storage Disease (UK) Ltd

The AGSD-UK provides support and help for individuals and families affected by any one of the fourteen Glycogen Storage Diseases.

Founded 1988

  • Mission statement

    The Association for Glycogen Storage Disease (UK) Limited aims to provide support to children and adults affected by Glycogen Storage Disease (GSD), thie carers and their families throughout the UK.
    Our object is "The relief of sickness, particularly of persons suffering from any form of Glycogen Storage Disease".
    In more detail we:
    Protect and promote the best interests of persons affected with GSD.
    Act as a vehicle of communication on GSD related matters by publishing and distributing relevant material.
    Contribute to the advancement of treatments and cures through sponsorship of research, studies and trials.
    Act as a focus for educational, scientific and charitable activities related to GSD.
    Liaise with GSD and related disease support groups around the world.

  • Aims

    Association For Glycogen Storage Disease (UK) Ltd aims to:

    • Protect and promote the best interests of persons affected with GSD. GSDs require careful control of diet and exercise to protect the person's major organs and muscles.
    • Act as a vehicle of communication on GSD related matters by publishing and distributing relevant material. Knowledge of rare diseases is often scarce, we aim to provide a reliable source for patients
    • Contribute to the advancement of treatments and cures through sponsorship of research, studies and trials. Scientific studies are very expensive and we need funds to promote targeted research.
    • Act as a focus for educational, scientific and charitable activities related to GSD. Although small we have been very effective at bringing international GSD experts together.
    • Liaise with other GSD associations around the world. The UK GSD population is very small, by networking globally we have made great advances in knowledge and in developing safe therapies.
  • Overview

    Established: May 1988

    Registered Charity Number: 1132271

    Board members: 6

    Part time staff: 2

    Volunteers: 7

    Phone number: 01489 877 991

    Address: Old Hambledon Racecourse Centre Sheardley Lane Droxford SO32 3QY

    View charity accounts on the Charity Commission website