The I Have IIH Foundation

The I Have IIH Foundation

Charity information

The I Have IIH Foundation

We are a Patient Support and Advocacy Charity for IIH a rare disease, Idiopathic Intracranial Hypertension. Charity No 115583

Founded 2010

  • Mission statement

    Our Mission is:

    To promote social inclusion for the public benefit by preventing people from becoming socially excluded who have Idiopathic Intracranial Hypertension, relieving the needs of those people who are socially excluded and assisting them to integrate into society.

    1. Raise public awareness of the issues and affects Idiopathic Intracranial Hypertension has on the individual affected generally and in their social exclusion

    2. Provide information, educational and support material

    3. Provide forums, advocacy and general support

    4. Establish Idiopathic Intracranial Hypertension as a recognised disease#

    5. To promote and protect the physical and mental health of sufferers of Idiopathic Intracranial Hypertension in England and Wales through the provision of financial assistance, support, education and practical advice

  • Aims

    The I Have IIH Foundation aims to:

    • Provide information booklets on IIH to Neurology Departments in the UK to be available to IIH patients.
    • Provide forums, advocacy and general support
    • Raise public awareness of the issues and affects Idiopathic Intracranial Hypertension has on the individual affected generally and in their social exclusion
    • To promote and protect the physical and mental health of sufferers of Idiopathic Intracranial Hypertension in England and Wales through the provision of financial assistance, support, education and practical advice
    • To promote social inclusion for the public benefit by preventing people from becoming socially excluded who have Idiopathic Intracranial Hypertension, relieving the needs of those people who are socially excluded and assisting them to integrate into society.
  • Overview

    Established: May 2010

    Registered Charity Number: 1155833

    Board members: 4

    Volunteers: 10

    Phone number: 0114 2692931

    Address: 18 Grange Road Sheffield South Yorkshire S20 1BW

    View charity accounts on the Charity Commission website