Goldenhar Family Support Group (UK)

Goldenhar Family Support Group (UK)

Charity information

Goldenhar Family Support Group (UK)

We offer confidential help and support to families who are affected by the rare condition Goldenhar Syndrome and related conditions such as Hemifacial Microsomia and Microtia.

Founded 1989

  • Mission statement

    The relief of sickness and the protection and preservation of the health of persons affected by Goldenhar Syndrome (also known as first and second branchial arch syndrome, facio-auriculo-vertebral spectrum (FAV), oculo-auriculo-vertebral dysplasia (OAV)) and any related condition and their families and carers in particular by but not restricted to (a) the advancement of the education of the medical profession and the general public into Goldenhar Syndrome and its implications for the family. (b) The promotion of research into the causes, effects, treatment and management of Goldenhar Syndrome and to disseminate the useful results thereof.

  • Aims

    Goldenhar Family Support Group (UK) aims to:

    • To support families throughout the UK who face the day to day challenges of supporting relatives with Goldenhar Syndrome and related conditions.
    • To provide accurate and up-to-date information on the condition and its treatments.
    • To put families in touch with others affected by this condition.
  • Overview

    Established: January 1989

    Registered Charity Number: 1099642

    Board members: 7

    Volunteers: 7

    Phone number: 01483 747289

    Address: Durrington Ridgeway Close Horsell Woking Surrey GU21 4RD

    View charity accounts on the Charity Commission website