Myotonic Dystrophy Support Group

Myotonic Dystrophy Support Group

Charity information

Myotonic Dystrophy Support Group

Founded in 1989, the MDSG is the only charity within the UK devoted specifically to helping those affected by Myotonic Dystrophy which is the most common form of Muscular Dystrophy in adults.

Founded 1989

  • Mission statement

    The MDSG offers the hand of friendship and support to those affected by Myotonic Dystrophy through a 24 hour National Helpline, Newsletter and Publications, Website, Fundraising and Research, the running of the Support Group Office in Nottingham and organising an annual National Conference.

  • Aims

    Myotonic Dystrophy Support Group aims to:

    • To offer assistance, support and information to those people affected by Myotonic Dystrophy, their carers and families, both directly and indirectly, and anything done in reasonable pursuance thereto.
  • Overview

    Established: June 1989

    Registered Charity Number: 1134499

    Board members: 10

    Part time staff: 2

    Volunteers: 45

    Phone number: 01159870080

    Address: Bennetts Cottage Martin Fordingbridge SP6 3LN

    View charity accounts on the Charity Commission website
  • Funding the Myotonic Dystrophy Patient Registry

    There is no therapy or cure for Myotonic Dystrophy, but this may well change with recent a... More