Down's Syndrome Association

Down's Syndrome Association

Charity information

Down's Syndrome Association

Who we are
We are the only organisation in this country focusing solely on all aspects of living successfully with Down’s syndrome. Since 1970, we have grown from being a local parent support group to a national charity with over 20,000 members, a national office in Teddington Middlesex, offices in Northern Ireland and Wales and a regional development team. Despite this, the organisation is run by a total staff of only 38 (many of them part time), and a network of around 100 regional volunteer-led support groups.

Founded 1970

  • Mission statement

    Our mission
    We provide information and support for people with Down’s syndrome, their families and carers, and the professionals who work with them.
    We strive to improve knowledge of the condition.
    We champion the rights of people with Down’s syndrome.
    What we do
    Our organisation is divided into various teams, including:

    Information - run the helpline; provide info about all aspects of living with Down's syndrome including welfare, education and health; advise new parents or anyone experiencing difficulties
    Fundraising - responsible for raising money for the association through events, sponsorship and trusts
    Communications - give key messages to the media, public and professionals; influence policy making; reponsible for external publications
    Training - run courses throughout the UK for members, professionals and carers
    Membership - responsible for all administration surrounding new members, existing members and affiliated groups

  • Aims

    Down's Syndrome Association aims to:

    • To help people with Down's syndrome live full and rewarding lives.
  • Overview

    Established: April 1970

    Registered Charity Number: 1061474

    Board members: 10

    Full time staff: 18

    Part time staff: 17

    Volunteers: 500

    Phone number: 0845 230 0372

    Address: 2A Langdon Park Teddington Middlesex TW11 9PS

    View charity accounts on the Charity Commission website
  • The DSActive Programme

    The aim of DSActive is to provide children and young adults with Down’s syndrome (DS) a ... More
  • Tell it Right, Start it Right

    The manner in which parents are told their child has or may have Down’s syndrome varies ... More
  • WorkFit -

    Employment for people with Down's syndrome
  • Frequency Of Mental Health Problems In Young Adult...

    Prevention and treatment of mental health problems in persons with Down syndrome (DS) rema... More